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What it does 

Aidan's Law (HR 5453) amends the Public Health Service Act to give states the option to prescribe standards and procedures for newborn testing for adrenoleukodystrophy. This bill is textually identical to a previously-introduced bill from the 114th Congress, S 2641 / HR 4692 (SciPol brief available), with two major differences:

  • Rather than requiring newborn testing of adrenoleukodystrophy and requiring the development of standards and procedures toward that end, this newer bill would give states the option to institute those requirements.
  • Because the newer bill does not have the mandate to prescribe standards and procedures, the funding penalty present in the older bill is removed.

As in the older bill, this newer bill would reauthorize the Heritable Disorders Program under the Public Health Service Act, providing it with $15 million each year between fiscal years 2019 and 2022.

Status 

HR 5453 was introduced in the House on April 10, 2018, and referred to the House Committee on Energy and Commerce on the same date.

Sponsors 

Sponsor: Representative Yvette D. Clarke (D-NY-9)

Cosponsor: Representative Lee M. Zeldin (R-NY-1)

Primary Author 
Andrew Pericak, MEM
Recommended Citation 

Duke SciPol, "First Look: Aidan's Law (HR 5453, 115th Congress)" available at http://scipol.duke.edu/content/first-look-aidans-law-hr-5453-115th-congress (04/16/2018).

License 
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